Childhood Nephrotic Syndrome, Minimal
Change Nephrotic Syndrome, FSGS, IGA Nephropathy
A resource
for parents who are coping with childhood nephrotic syndrome, minimal
change nephrotic syndrome (MCNS) Focal segmental glomerular sclerosis
(FSGS), IGA nephropathy and many other childhood kidney diseases.
In
1995 Isabell was diagnosed with MCNS. Hugo, her father, started searching the web
& usenet for information. Wouter was diagnosed with NS in
1996. His father Filip decided to build
a website and called it "The Parent's Place" . He used
his site to find other people with NS and to share
his knowledge about this disease. Hugo took over "The
Parent's Place" for a time until "The Parent's Place was
taken offline.
The
pages created by both Hugo and Filip were the building blocks for
KidComm today.
In March 1997, Wendy found "The Parent's Place" after her son was diagnosed
with FSGS (focal segmental glomerularsclerosis). She organized
a small email support group by emailing each parent listed on
Filip's site. Before long, the group became
quite large and we needed a host server. Wendy found Avenza.com
who offered to house the email group and host our site at no
charge. Wendy created the background gif and logos.
Avenza
was changing ownership so Wendy tracked down a new host for our
email group. The University of Alberta in Alberta Canada has been
the host of our email support groups ever since. The list was renamed
KidComm. (short for Kid/Kidney Communication)
Wendy
created and currently maintains and updates this site. She also created and
maintains two photo pages for group participants plus created and
maintains KidTalk,
KidTalk2 and Yaktalk email groups.
Wendy
found a new host willing to donate web space to us in April/04.
Special thanks to the individual who continues to allow our use of
this web space for no charge.
The Parents Place Bulletin board was created by
Wendy and is maintained by both her and Erin.
Erin is an active participant in many other online Kidney related
sites such as Nephkids. She is without a doubt indispensable to
Kidcomm and our history. Erin also founded and maintains the Kidney
Kids Resource ring.
Any
income generated by advertising on this site goes directly to
maintaining the site (domain name renewal, etc etc)
