Childhood Nephrotic Syndrome, Minimal
Change Nephrotic Syndrome, FSGS, IGA Nephropathy
A resource
for parents who are coping with childhood nephrotic syndrome, minimal
change nephrotic syndrome (MCNS) Focal segmental glomerular sclerosis
(FSGS), IGA nephropathy and many other childhood kidney diseases.
KidTalk
is an email groupfor kids
with kidney disease. Diseases like childhood nephrotic syndrome,
minimal change nephrotic syndrome, FSGS, IGA Nephropathy and many
others! We email each other and talk about our hobbies, interests,
medications and lots of other things. Kids and young teens of all
ages can join our email group.
In
order for you to subscribe to the KidTalk email group for kids,
you will have to get your parents permission. You will also need
to tell us your name, your age, and the type of kidney disease you
have. We are a closed private group and need this information from
every member of our mailing list. Each child/teen is approved after
we have received parental permission.
Would
you like to talk to other kids with kidney disease?
Kids with fun and interesting hobbies? Would you like to read what
other kids have to say? If you would like to subscribe to the KidTalk
email list, click
here to subscribe.
Frequently
asked questions:
What
is this group all about? The subscribers of this
group are kids and young teens of all ages who have different kidney
diseases such as Childhood nephrotic syndrome, FSGS, IGA Nephropathy
or other kidney related illness's. Parents of young children are
encouraged to help their children type email messages to the group
but are not encouraged to participate in conversation. This is a
group for kids/teens only. Parents, if you have any questions
please contact
us.
Why
are you a closed & private group? We talk about
our hobbies, interests, medications and lots of other things. Sometimes
our emails are very personal and confidential. We want to know who
receives our messages. We want to make sure that only kids and teens
like us read our messages. We value our privacy and do not want
our personal experiences spread throughout the world of the internet.
We feel our conversations should be confidential.
Who
can subscribe? Any child/young teen with kidney
disease or kidney related illness.
How
do I subscribe? Click here
to subscribe Please tell us your name, your age, and the type
of kidney disease you have. We are a closed private group and need
this information from every member of our mailing list.
