Childhood Nephrotic Syndrome, Minimal
Change Nephrotic Syndrome, FSGS, IGA Nephropathy
A resource
for parents who are coping with childhood nephrotic syndrome, minimal
change nephrotic syndrome (MCNS) Focal segmental glomerular sclerosis
(FSGS), IGA nephropathy and many other childhood kidney diseases.
KidTalk2
is an email group for kids and young teens who have brothers and
sisters with kidney disease. We email each other and talk about
our hobbies, interests, thoughts, worries and lots of other things.
Kids and teens of all ages can join our email group but you must
have a brother or sister with a kidney disease such as Childhood
nephrotic syndrome, FSGS, IGA nephropathy or other kidney related
illness.
In
order for you to subscribe to the KidTalk2 email group for kids,
you'll have to get your parents permission. You will also need to
tell us your name, your age, and the type of kidney disease your
brother or sister has. We are a closed private group and need this
information from every member of our mailing list. Each child/teen
is approved after we have received parental permission.
Would
you like to talk to other kids with brothers and sisters like yours?
Kids with fun and interesting hobbies? Would you like to read what
the other kids have to say?Click
here to subscribe
Frequently
asked questions:
What
is this group all about? The subscribers of this
group are kids and teens of all ages who have brothers and sisters
with different kidney diseases such as Childhood Nephrotic syndrome,
FSGS, IGA Nephropathy or other kidney related illness. Parents of
young children are encouraged to help their children type email
messages to the group but are not encouraged to participate in conversation.
This is a group for kids/teens only. Parents, if you have any questions
please contact
us.
Why
are you a closed & private group? We talk about
our hobbies, interests, medications and lots of other things. Sometimes
our emails are very personal and confidential. We want to know who
receives our messages. We want to make sure that only kids and teens
like us read our messages. We value our privacy and do not want
our personal experiences spread throughout the world of the internet.
We feel our conversations should be confidential.
Who
can subscribe? Any child/young teen that has a brother
or sister with a kidney disease or kidney related illness.
How
do I subscribe? Click here
to subscribe Please tell us your name, your age, and the type
of kidney disease you have. We are a closed private group and need
this information from every member of our mailing list.
